Osteogenesis imperfecta (OI) is a connective tissue disorder characterized by fragile bones, weak muscles, and loose ligaments. Bone problems can include bowing of the long bones, scoliosis (curvature of the spine), a barrel chest, and joint problems. Varying degrees of short stature and decreased muscle mass and strength may also be present.
Not so long ago, parents were advised to “protect” their children by carrying them on pillows and avoiding recreational activities. But this well-intentioned approach did not protect children from fractures (broken bones) and may have hindered development and achievement of independent functioning. Bone growth depends on muscle pull as well as loading (weight bearing) through standing, walking, and lifting. Immobilization may result in loss of muscle and skeletal mass. It can take as long as a year to restore this bone mass following a relatively short period of immobilization. Over the years, it has become clear that physical activity is an important part of managing OI in both children and adults.
Research indicates that physical activity is important because it promotes:
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